Breaking The Silence on Albinism
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Wed 03 DecLusaka Province, ZambiaDecember 3rd is not just another day it is a global celebration of resilience, inclusion, and the power of diversity. Let’s amplify the voices of persons with disabilities and build a world where accessibility is not but essential. Join the movement. Break the barriers. Celebrate ability.
Mon 22 DecLusakaAs the year winds down, we’re turning up the joy! Join us for an unforgettable day of celebration, connection, and reflection. This isn’t just a party t’s a tribute to resilience, unity, and the vibrant spirit of our community.
Stream all 12 episodes online on Inwithttps://inwit.tv/video-detail/miss-albinismThis is a reality TV show on albinism hosted by the renowned musician John Chiti. the program is about beauty, lifestyle and confidence of female models with albinism. Lusaka is the first province to crown 3 out of 10 models who competed for the title Miss Albinism Lusaka. other provinces of Zambia
Our Focus Areas
Rights Advocacy
Championing policy changes and legal protections to ensure equal rights and opportunities for all persons with albinism.
Awareness Campaigns
Educating communities about albinism to combat myths, misconceptions, and discrimination through targeted outreach programs.
Support Services
Providing essential services including sunscreen distribution, protective clothing, and healthcare access coordination.
Education Access
Ensuring children with albinism have access to quality education with appropriate accommodations and support systems.
FQA
What challenges do people with albinism face in Zambia?
In Zambia, people with albinism face discrimination, social exclusion, and violent attacks, including ritual killings driven by myths that their body parts bring luck or wealth. They also struggle with limited access to sunscreen, protective clothing, and eye care, as well as barriers to education and employment.
What are common myths about albinism?
Many believe albinism is a curse, a result of infidelity, or that people with albinism have magical body parts. Some myths claim they don’t die but “disappear.” These false beliefs drive stigma and harm, especially in some African communities.
Is albinism contagious?
No, albinism is not contagious. It’s a genetic condition present at birth and cannot be spread through contact or any other means.
When is International Albinism Awareness Day?
International Albinism Awareness Day is observed every year on June 13. It promotes awareness of albinism, fights stigma, and advocates for better access to healthcare and opportunities for those affected.
Does albinism affect all races?
Yes, albinism occurs in all racial and ethnic groups worldwide. It’s not tied to any specific race and happens at roughly the same rate globally, about 1 in 17,000 to 20,000 people.
How does albinism happen?
Albinism is caused by mutations in genes that control melanin production, like TYR or OCA2. It’s usually inherited when a child gets two copies of the mutated gene—one from each parent. This stops the body from making enough melanin, leading to the characteristic features of albinism.
Is albinism considered a disability?
Yes, albinism is often classified as a disability because of vision problems (like nystagmus or low visual acuity) and skin sensitivity to sunlight, which can lead to health issues like skin cancer. These challenges can impact daily life, education, and work.
What is albinism?
Albinism is a group of rare, inherited genetic disorders characterized by little or no production of melanin, the pigment responsible for coloring the skin, hair, and eyes. This results in very pale skin, white or light-colored hair, and light-sensitive eyes, often accompanied by vision problems.
Can albinism occur in animals and plants?
Yes, albinism affects animals and plants. In animals, it causes white fur, feathers, or scales and pinkish eyes. In plants, it leads to pale or white leaves, making them sensitive to sunlight and less able to photosynthesize effectively.
How many people with albinism are there in Zambia, and what challenges do they face?
Based on Zambia’s 2022 census, around 64,000 people live with albinism, with over 40,000 in rural areas and about 23,000 in urban areas. This number may reflect better data collection compared to the 2010 census estimate of 25,000.